Que savez-vous sur le rhumatisme psoriasique ?
Le rhumatisme psoriasique est une maladie complexe et diverse, affectant chaque personne différemment.1,2 Il existe six différentes manifestations, ou « domaines », qui ont été identifiés et que les personnes atteintes peuvent présenter (cliquez ici pour en savoir plus sur les domaines). Jusqu’à présent, les résultats de notre questionnaire ont montré jusqu’à 57 combinaisons différentes de ces domaines, avec 1 personne sur 5 présentant la totalité des six domaines. Découvrez-en davantage sur les six domaines du rhumatisme psoriasique, l’impact qu’il peut avoir sur votre vie quotidienne et la façon de le prendre en charge.
QUE SAVEZ-VOUS VRAIMENT ?
Quelle est votre combinaison ? Questionnaire
Développé conjointement avec des patients et des rhumatologues, ce questionnaire est conçu pour vous aider à mieux comprendre votre maladie et vos préférences de traitement. Après avoir répondu au questionnaire, vous recevrez une synthèse personnalisée, comprenant des informations pour vous aider à discuter avec votre rhumatologue de l’impact de votre maladie sur votre vie quotidienne et pour trouver le traitement adapté à votre situation.
QUELLE EST VOTRE COMBINAISON ?
Trouver un rhumatologue
Un rhumatologue vous donnera des conseils sur la prise en charge de votre maladie. Le moteur de recherche vous aidera à trouver un rhumatologue près de chez vous (liens vers les registres nationaux).
TROUVER UN RHUMATOLOGUE
Vivre avec le rhumatisme psoriasique
Découvrez comment la combinaison de domaines du rhumatisme psoriasique peut avoir un impact sur une personne, et comment le questionnaire a aidé les personnes atteintes de rhumatisme psoriasique à mieux comprendre les composantes individuelles de leur maladie.
LIRE LES ÉTUDES DE CAS
Pour vous, aidants
Vous vous occupez d’une personne atteinte de rhumatisme psoriasique ? Vous trouverez ici des conseils pour aider un proche dans sa vie quotidienne, ses rapports sociaux et la prise en charge de sa condition.
VOUS VOUS OCCUPEZ D’UNE PERSONNE ATTEINTE DE RHUMATISME PSORIASIQUE ?
Ressources supplémentaires
Que vous soyez un(e) patient(e) ou un(e) aidant(e), il existe des ressources pour vous aider à mieux comprendre et mieux prendre en charge le rhumatisme psoriasique.
EXPLORER LES RESSOURCES
Références
1. Kavanaugh A, et al. Rheumatol Ther 2016;3:91–102.
2. Aletaha D, et al. The many faces of psoriatic arthritis – a challenge to treatment to target? Reumatologia. 2016; 54(1): 1–2.
3. Mayo Clinic, Psoriatic Arthritis, Available at: https://www.mayoclinic.org/diseases-conditions/psoriatic-arthritis/symptoms-causes/syc-20354076. Accessed August 2018
4. Al Hammadi, et al., Psoriatic Arthritis – Overview, MedScape. Available at: https://emedicine.medscape.com/article/2196539-overview#a1. Accessed August 2018
5. Arthritis Research UK, What causes psoriatic arthritis?, Available at: https://www.arthritisresearchuk.org/arthritis-information/conditions/psoriatic-arthritis/causes.aspx, Accessed September 2018
6. Al Hammadi, et al., Psoriatic Arthritis – Pathophysiology and Etiology, MedScape. Available at: https://emedicine.medscape.com/article/2196539-overview#a4. Accessed August 2018
7. International Federation of Psoriasis Associations, World Psoriasis Day 2013, available at: https://ifpa-pso.com/wp-content/uploads/2017/01/WPD-2013-General-Summary.pdf. Accessed August 2018.
8. PAPAA, About Psoriatic Arthritis, Available at: http://www.papaa.org/resources/about-psoriatic-arthritis
9. NHS Choices, Psoriatic Arthritis, Available at: https://www.nhs.uk/conditions/psoriatic-arthritis/. Accessed July 2018
10. Coates LC, et al. Arthritis Rheumatol 2016;68:1060–71
11. Arthritis Foundation. Psoriatic Arthritis and Back Pain, Available at: https://www.arthritis.org/about-arthritis/types/psoriatic-arthritis/articles/psa-back-pain.php. Accessed September 2018
12. McGonagle, D. & Benjamin, M., Enthesis, enthesitis and enthesopathy, Arthritis Research UK, Available at: https://www.arthritisresearchuk.org/health-professionals-and-students/reports/topical-reviews/topical-reviews-autumn-2009.aspx. Accessed July 2018
2. Aletaha D, et al. The many faces of psoriatic arthritis – a challenge to treatment to target? Reumatologia. 2016; 54(1): 1–2.
3. Mayo Clinic, Psoriatic Arthritis, Available at: https://www.mayoclinic.org/diseases-conditions/psoriatic-arthritis/symptoms-causes/syc-20354076. Accessed August 2018
4. Al Hammadi, et al., Psoriatic Arthritis – Overview, MedScape. Available at: https://emedicine.medscape.com/article/2196539-overview#a1. Accessed August 2018
5. Arthritis Research UK, What causes psoriatic arthritis?, Available at: https://www.arthritisresearchuk.org/arthritis-information/conditions/psoriatic-arthritis/causes.aspx, Accessed September 2018
6. Al Hammadi, et al., Psoriatic Arthritis – Pathophysiology and Etiology, MedScape. Available at: https://emedicine.medscape.com/article/2196539-overview#a4. Accessed August 2018
7. International Federation of Psoriasis Associations, World Psoriasis Day 2013, available at: https://ifpa-pso.com/wp-content/uploads/2017/01/WPD-2013-General-Summary.pdf. Accessed August 2018.
8. PAPAA, About Psoriatic Arthritis, Available at: http://www.papaa.org/resources/about-psoriatic-arthritis
9. NHS Choices, Psoriatic Arthritis, Available at: https://www.nhs.uk/conditions/psoriatic-arthritis/. Accessed July 2018
10. Coates LC, et al. Arthritis Rheumatol 2016;68:1060–71
11. Arthritis Foundation. Psoriatic Arthritis and Back Pain, Available at: https://www.arthritis.org/about-arthritis/types/psoriatic-arthritis/articles/psa-back-pain.php. Accessed September 2018
12. McGonagle, D. & Benjamin, M., Enthesis, enthesitis and enthesopathy, Arthritis Research UK, Available at: https://www.arthritisresearchuk.org/health-professionals-and-students/reports/topical-reviews/topical-reviews-autumn-2009.aspx. Accessed July 2018
13. National Psoriasis Foundation. About Psoriatic Arthritis. Available at: https://www.psoriasis.org/about-psoriatic-arthritis. Accessed September 2018
14. PAPAA. What is Psoriatic Arthritis, Available at: http://www.papaa.org/sites/default/files/WhatisPsa%20final_2018.pdf. Accessed July 2018
15. Psoriatic-arthritis.com. What Are Common Symptoms of PsA? Available at: https://psoriatic-arthritis.com/psa-symptoms/. Accessed September 2018
16. NHS. Psoriasis Symptoms. Available at: https://www.nhs.uk/conditions/psoriasis/symptoms/. Accessed September 2018
17. PAPAA, Nail Psoriasis, Available at: http://www.papaa.org/further-information/nail-psoriasis. Accessed July 2018
18. Enthesitis. Enthesitis Symptoms and Treatments. Available at: http://enthesitis.org/enthesitis-symptoms-treatments/. Accessed July 2018
19. National Institute of Arthritis and Musculoskeletal and Skin Diseases, Psoriasis, Available at: https://www.niams.nih.gov/health-topics/psoriasis. Accessed July 2018
20. Mayo Clinic, Psoriasis, Available at: https://www.mayoclinic.org/diseases-conditions/psoriasis/symptoms-causes/syc-20355840. Accessed September 2018.
14. PAPAA. What is Psoriatic Arthritis, Available at: http://www.papaa.org/sites/default/files/WhatisPsa%20final_2018.pdf. Accessed July 2018
15. Psoriatic-arthritis.com. What Are Common Symptoms of PsA? Available at: https://psoriatic-arthritis.com/psa-symptoms/. Accessed September 2018
16. NHS. Psoriasis Symptoms. Available at: https://www.nhs.uk/conditions/psoriasis/symptoms/. Accessed September 2018
17. PAPAA, Nail Psoriasis, Available at: http://www.papaa.org/further-information/nail-psoriasis. Accessed July 2018
18. Enthesitis. Enthesitis Symptoms and Treatments. Available at: http://enthesitis.org/enthesitis-symptoms-treatments/. Accessed July 2018
19. National Institute of Arthritis and Musculoskeletal and Skin Diseases, Psoriasis, Available at: https://www.niams.nih.gov/health-topics/psoriasis. Accessed July 2018
20. Mayo Clinic, Psoriasis, Available at: https://www.mayoclinic.org/diseases-conditions/psoriasis/symptoms-causes/syc-20355840. Accessed September 2018.
21. Husted JA, et al. Arthritis Care Res (Hoboken) 2011;63:1729–35.
22. Edson-Heredia E, et al. J Eur Acad Dermatol Venereol 2015;29:955–63.
23. Ogdie A, et al. J Rheumatol 2014;41:2315–22
24 Ogdie A, et al. J Invest Dermatol 2017 [Epub].
25. Mayo Clinic, Caregiver stress: Tips for taking care of yourself, Available at: https://www.mayoclinic.org/healthy-lifestyle/stress-management/in-depth/caregiver-stress/art-20044784. Accessed August 2018.
26. Lebwohl MD, et al. J Am Acad Derm 2014;70:871–81.
27. Arthritis UK (2013). Caring for a person with arthritis. Published April 2013 2005/CARER/13-1
28. Carers UK (2018). Looking after someone (2018). Available at: www.carersuk.org Accessed August 2018.
29. Armstrong, A., Quality of Life and Work Productivity Impairment among Psoriasis Patients: Findings from the National Psoriasis Foundation Survey Data 2003–2011, PLOS ONE, 7(12)
30. Thompson A et al (2013). Building confidence in social situations: A guide for people living with a skin condition, including scars. http://skinsupport.org.uk/sites/default/files/Social%20Confidence%20Self-help%20Leaflet_0.pdf. Accessed August 2018.
31. PAPPA. Psychological Aspects Of Psoriasis. (2012). Available at:
www.papaa.org Accessed August 2018.
22. Edson-Heredia E, et al. J Eur Acad Dermatol Venereol 2015;29:955–63.
23. Ogdie A, et al. J Rheumatol 2014;41:2315–22
24 Ogdie A, et al. J Invest Dermatol 2017 [Epub].
25. Mayo Clinic, Caregiver stress: Tips for taking care of yourself, Available at: https://www.mayoclinic.org/healthy-lifestyle/stress-management/in-depth/caregiver-stress/art-20044784. Accessed August 2018.
26. Lebwohl MD, et al. J Am Acad Derm 2014;70:871–81.
27. Arthritis UK (2013). Caring for a person with arthritis. Published April 2013 2005/CARER/13-1
28. Carers UK (2018). Looking after someone (2018). Available at: www.carersuk.org Accessed August 2018.
29. Armstrong, A., Quality of Life and Work Productivity Impairment among Psoriasis Patients: Findings from the National Psoriasis Foundation Survey Data 2003–2011, PLOS ONE, 7(12)
30. Thompson A et al (2013). Building confidence in social situations: A guide for people living with a skin condition, including scars. http://skinsupport.org.uk/sites/default/files/Social%20Confidence%20Self-help%20Leaflet_0.pdf. Accessed August 2018.
31. PAPPA. Psychological Aspects Of Psoriasis. (2012). Available at:
www.papaa.org Accessed August 2018.